My little angel was looking a lot better today. She has managed to rub her chin and in doing so has rubbed off some of her sores. It’s okay though because it’s the dried up bits.
She is now weighing 2168gms or 4.7 pounds. She is on about 21ml of milk every 6 hours and is steadily increasing. She had some more time off her TPN today which is going really well. Once her levels of her cpap go down they are going to try and put her on low flow oxygen for about half and hour and try and feed her a bottle. She is sucking fine but they have to make sure she swallows okay. Fingers crossed this all goes well!!
I’m on cake making duties again tonight, we have to take a cake in for her reaching 2kg. Well they actually said 2 cakes, 1 for each kg. She is nearly at her due date so I think the nurses might get some special goodies from us next week.
Thursday, January 29, 2009
Tuesday, January 27, 2009
27th January 2009
Today is darts night so I went in and took my mum for a visit. She hasn’t seen her since her surgery and she said she has got so big. She got to change her pooey nappy, Hahahaha I told her I’d make her do it!! That’s what nana’s are for isn’t it?
Anyway today she was a lot more settled and her sores are drying up and healing really well. She had 1 hour off the TPN today and coped nicely. Her milk intake is now up to 19ml and increasing every 3rd feed by 1ml. I really don’t think I’m going to be able to keep up with her at the rate she is going.
Anyway today she was a lot more settled and her sores are drying up and healing really well. She had 1 hour off the TPN today and coped nicely. Her milk intake is now up to 19ml and increasing every 3rd feed by 1ml. I really don’t think I’m going to be able to keep up with her at the rate she is going.
26th January 2009
Back to work for Antz today, and because he was working late I dropped off the kids at mum’s (it was my nephews birthday over there anyway) and I went in by myself. Baby has now reached 2kg. Her weight was 2000gms exactly!! I guess that means another cake!! They are cycling her on and off her TPN to give her liver a rest. Today it was off for half an hour tomorrow possibly 1 hour and they will gradually increase it to see how she copes. Last night she had a really crappy night as babies do, and was awake most of the night. She was a little bit irritable when I was there, so all she wanted to do was suck on her dummy. It is taking her a while to get used to her dummy because she associates anything put in her mouth as something bad. We just have to keep trying and get her used to it.
25th January 2009
Sunday!!! No such thing as a sleep in when the kids are waking you up before 8am!! We had a visit today from Antz’s grandson. He is 15 months old and is Trinity’s nephew!! Funny to think she is an Aunty. She must be 1 of the smallest aunties’ in the country.
Baby is still in isolation which is quite nice, they said they’ve picked out our new room in the new part of the hospital with a mini bar and an ensuite. Sounds good to me. It will be nice to be in new surroundings. Hopefully we aren’t there for too long and can bring our baby home.
Baby is still in isolation which is quite nice, they said they’ve picked out our new room in the new part of the hospital with a mini bar and an ensuite. Sounds good to me. It will be nice to be in new surroundings. Hopefully we aren’t there for too long and can bring our baby home.
24th January 2009
Trinity has now been moved into the single room, so we get to have our own sink and can hide away where nobody can see us. Her bottom is really sore but it is starting to dry out which is good. The sores are getting spread from her rubbing her face and ;putting her fingers in her mouth. We think they are most likely from the tape that is used to stick the tubes etc on her face. She had a little sore before surgery and has most likely just rubbed it and irritated it and made it get infected and spread.
I tell ya if it’s not one thing with her it’s something else. My girl is actually 85 days old today or you could say 12 weeks old. It is getting so close to her term date. I can’t believe how fast time has gone by.
I tell ya if it’s not one thing with her it’s something else. My girl is actually 85 days old today or you could say 12 weeks old. It is getting so close to her term date. I can’t believe how fast time has gone by.
23rd January 2009
My daughter is still in isolation and the tests they did have come back showing nothing. So in the meantime she is still having antibiotics and we still aren’t having visitors, we could have people in but it just makes it easier when we don’t. I hope she hurries up and gets better because we haven’t had a cuddle with her since before she had her surgery, so that’s a few weeks ago now. She will be missing her mummy daughter cuddles. Well I know I do. I just want to pick her up but I can’t.
Friday, January 23, 2009
22nd January 2009
Well today I got a phone call from the unit. It was a bit unexpected. Trinity has got some sores on her face and it has spread under her chin and on other parts of her body. They aren’t sure what it is so they’ve put her in isolation so that other babies don’t get infected by it. When we got there she was still in the same place but they’ve put up a white screen. Anybody that goes in must wear a gown or an apron and gloves. Well that’s what the sign said. But it was just me and Antz so we had to just wash our hands every time we entered in and out. It’s not as bad as it makes out. She is still alert and having feeds and doing what she normally does, like pulling out tubes but she just has sores on her face and body. So for the meantime we aren’t having visitors until she gets better.
21st January 2009
Today I went in to see baby early. I got there around 1.30pm hoping for a cuddle but she was still a bit sore and unsettled. She was in her big bed, but no clothes, too many cords and drips everywhere so it’s a bit too hard to put clothes on her. Her dad got there after work, and he was just about yelling the whole place down. He was so happy to see his girl in a big bed. The nurses had thought I’d tell him but I was good and I kept quiet about it. Do you know how hard that was???
She is doing well on feeds and is slowly increasing by 1ml every 12 hours. Her weight is steadily increasing. She is now 82 days old and is weighing just over 3 lbs.
She is doing well on feeds and is slowly increasing by 1ml every 12 hours. Her weight is steadily increasing. She is now 82 days old and is weighing just over 3 lbs.
Tuesday, January 20, 2009
20th January 2009
Today I went in around lunchtime and I took my mum in, I know it was outside of visiting hours but we thought we’d risk it. Of course she was allowed in. Baby was good but in a little bit of pain, she is still having morphine and pamol. She was due for cares so I made my Mum do them. I thought she might have a nice stinky nappy but she didn’t. Well you just wait Nana you’ll get plenty of them!
Another one of our friends left today to go back to Nelson. I couldn’t help but cry when she left, she was crying too. I know that when we leave they’ll have to mop the floor because there will be so much tears. OOO I can’t wait for that day. But hopefully we will catch up with them when they come back up for their baby’s operation.
Something exciting was also going to happen today after I left, my baby was going to be put into an incubator without a lid, that means she will be put in clothes and look like a big baby. I haven’t told her daddy we are going to wait and see what he says when we go in there. Trinity’s other mate was also going into one, they like to do things together.
Another one of our friends left today to go back to Nelson. I couldn’t help but cry when she left, she was crying too. I know that when we leave they’ll have to mop the floor because there will be so much tears. OOO I can’t wait for that day. But hopefully we will catch up with them when they come back up for their baby’s operation.
Something exciting was also going to happen today after I left, my baby was going to be put into an incubator without a lid, that means she will be put in clothes and look like a big baby. I haven’t told her daddy we are going to wait and see what he says when we go in there. Trinity’s other mate was also going into one, they like to do things together.
Monday, January 19, 2009
19th January 2009
Today is Wellington anniversary day. It’s just another day for us traveling to the hospital. People always ask us if we go in every day or why we go in every day, well those are really stupid questions. Our daughter is just as important to us as all of our other kids, and while she is still in hospital we will still go in there. What kind of parents would we be if we didn’t go and see her. She is the most important thing in our lives right now and until she is home we will not relax.
I would like to thank all the people that leave comments on the blog, even though I don’t respond I do read them. Support is the biggest thing for us, without everybody’s help we couldn’t do what we do.
Anyway when we arrived today we took another cake in, this was called the poo cake. It was banana though, we thought we better not make a chocolate one! Our little girl had apparently pulled out her ventilator tube last night! They left her to see how she would cope and she has gone straight onto Wellington cpap. She thinks she can just do everything by herself now. She has also started back on her feeds again, and they aren’t slow feeding her like before. At the moment she is on 2ml every 4 hours. But they won’t increase her feeds too much until they know she can cope.
I would like to thank all the people that leave comments on the blog, even though I don’t respond I do read them. Support is the biggest thing for us, without everybody’s help we couldn’t do what we do.
Anyway when we arrived today we took another cake in, this was called the poo cake. It was banana though, we thought we better not make a chocolate one! Our little girl had apparently pulled out her ventilator tube last night! They left her to see how she would cope and she has gone straight onto Wellington cpap. She thinks she can just do everything by herself now. She has also started back on her feeds again, and they aren’t slow feeding her like before. At the moment she is on 2ml every 4 hours. But they won’t increase her feeds too much until they know she can cope.
Sunday, January 18, 2009
18th January 2009
Well I am going to call today “S” day, it stands for S**T. We got a phone call just after 11pm last night to tell us that our daughter had finally opened her bowels and did a number 2’s. You don’t know how excited we were, I think the nurses were all so excited as well which is why they rang us. They rang again 5 minutes later to say she had done another one. 11 weeks is such a long time to go without having one which is why we got so excited. Now we know her surgery has worked and she can poo on her own.
When we went in the nurse from last night had saved it for us in a little jar, how nice, but unfortunately I threw it away. I don’t think it would’ve lasted long in the house before it became rather smelly.
Before we left we did her cares oh and lucky me I got to change her nappy and to my delight she had done another poo just for me.
When we went in the nurse from last night had saved it for us in a little jar, how nice, but unfortunately I threw it away. I don’t think it would’ve lasted long in the house before it became rather smelly.
Before we left we did her cares oh and lucky me I got to change her nappy and to my delight she had done another poo just for me.
Saturday, January 17, 2009
17th January 2009
Today we took Cassius and Nimeesha in to visit their sister, Nimeesha hasn’t been in since before her surgery.
She was rather funny today she was lying on her side so her big sister couldn’t see her plasters. That’s all she wanted to go in for. Anyway she just kept on putting her hand up over her eye. I kept moving it and then she kept putting it back. Little madam that she is.
We left early because they were having another attempt at putting her iv drip in. Hopefully it’s all gone to plan.
She is due to have another x-ray, her first one showed no gas, so lets hope she gets gas this time.
She was rather funny today she was lying on her side so her big sister couldn’t see her plasters. That’s all she wanted to go in for. Anyway she just kept on putting her hand up over her eye. I kept moving it and then she kept putting it back. Little madam that she is.
We left early because they were having another attempt at putting her iv drip in. Hopefully it’s all gone to plan.
She is due to have another x-ray, her first one showed no gas, so lets hope she gets gas this time.
16th January 2009
Well not much has changed from yesterday. They have had trouble with her iv drip so they tried to replace it with no success. My poor baby.
Her weight has soared up to over 1700gms so we shall see how much she loses next week. We think she is really about 1500gms.
We had a look at the plans for the new hospital and were trying to decide what room we wanted. Hopefully in 2 weeks time we get a tour of the new unit. We can’t wait to move over there, it looks so much bigger and there is also a couple of lounges for the parents to relax in with their visitors and they will actually get to know each other. Only 27 more sleeps to go until the big move.
Her weight has soared up to over 1700gms so we shall see how much she loses next week. We think she is really about 1500gms.
We had a look at the plans for the new hospital and were trying to decide what room we wanted. Hopefully in 2 weeks time we get a tour of the new unit. We can’t wait to move over there, it looks so much bigger and there is also a couple of lounges for the parents to relax in with their visitors and they will actually get to know each other. Only 27 more sleeps to go until the big move.
Thursday, January 15, 2009
15th January 2009
Today was D day!! Dentist day!! I hate the dentist so much. I had to go back and have my stitches removed and a filling done for my middle top tooth. I was dreading it all week, but when they actually did it, it didn’t really hurt much at all. It was a deep prick in my gum which lasted about 20 seconds or so and that was it. I’m just glad it’s all over now and I can concentrate on stocking up my daughters milk supply. If she is anything like her brothers and sisters then she is going to love her food.
Only I went in for a visit today because I was already there this morning. We were supposed to have a rugby league meeting tonight but it was getting too late.
Anyway baby will have an x-ray tomorrow to see if she has any gas in her rectum, nice ay!! If she does then we are 1 step closer to getting her fed and on cpap again. No rush though I want her completely settled and ready to handle it.
Only I went in for a visit today because I was already there this morning. We were supposed to have a rugby league meeting tonight but it was getting too late.
Anyway baby will have an x-ray tomorrow to see if she has any gas in her rectum, nice ay!! If she does then we are 1 step closer to getting her fed and on cpap again. No rush though I want her completely settled and ready to handle it.
14th January 2009
Our little girl has been putting on weight and losing weight so we are not quite sure what her actual weight is now. Once she has recovered and started eating again then we can get a true reading of her weight. She had a little cry tonight when we got there, but apparently she had been behaving all day and decided to play up when we got there. Nothing unusual for our little madam.
We spent quite a bit of time tonight visiting other babies, well we always do, but tonight we were saying goodbye to one of the young mums that we have come to know. She was getting ready to head back to Palmy any day from tomorrow, so just incase we didn’t see her again we sat with her for a while. It is really hard to be a parent of a baby in the neonates but to be a young parent is extra stressful, so we just wanted to make sure she was okay and keeping on the right track. Good luck to her and her baby and hopefully we can catch up with them in a few years time.
We spent quite a bit of time tonight visiting other babies, well we always do, but tonight we were saying goodbye to one of the young mums that we have come to know. She was getting ready to head back to Palmy any day from tomorrow, so just incase we didn’t see her again we sat with her for a while. It is really hard to be a parent of a baby in the neonates but to be a young parent is extra stressful, so we just wanted to make sure she was okay and keeping on the right track. Good luck to her and her baby and hopefully we can catch up with them in a few years time.
Tuesday, January 13, 2009
13th January 2009
Well my girl is doing remarkably well considering what she has just been through. She is getting a bit swollen which is to be expected. It is so nice to see her tummy even if it is swollen, and how nice to be able to open her incubator without the smell of poo!! She must’ve gotten so used to it that it would’ve been normal to her. All this time that she has had her bag on, we’ve never cleaned it out or changed it!!! Hahahaha what a shame!!!
Her daddy opened up the side of her incubator and stuck his head in to give her a kiss, I snapped him out and apparently it’s not the first time he’s done it!! Naughty daddy! We didn’t expect her to be awake when we went in but she woke up and eyeballed us for about 10 minutes. She didn’t really move much but enough to make her iv drip not work!! That’s just typical behaviour for her. She’s got to be able to play up and be naughty somehow and she always manages to find a way.
Her daddy opened up the side of her incubator and stuck his head in to give her a kiss, I snapped him out and apparently it’s not the first time he’s done it!! Naughty daddy! We didn’t expect her to be awake when we went in but she woke up and eyeballed us for about 10 minutes. She didn’t really move much but enough to make her iv drip not work!! That’s just typical behaviour for her. She’s got to be able to play up and be naughty somehow and she always manages to find a way.
12th January 2009
What a quick day today has been. My son had his check up so we were planning on getting to the hospital at around 10.30am. Trinity’s surgery was scheduled for some time in the afternoon, so Antz was going to finish work and then try and get there before she went in. As I was picking up my Mum from Tawa I received a phone call saying to be there by 10.30am as there was an opening in theatre so baby was going in early. We rushed to the hospital I dropped mum off with Cassius at the fracture clinic and then I raced around to the other entrance of the hospital. I was stuck in traffic outside of the hospital where they have put the new lights and my phone rang. They were going to meet me in theatre because baby was all ready to go. I finally parked the car and ran to the lifts with the phone playing “in the jungle the might jungle the lion sleeps tonight” (that’s my message tone) people thought I was a bit crazy. I got to the lifts and was waiting for what seemed like forever. I was nearly about to run up the stairs from level B to level H when a lift opened, 1 lady got in and then got out saying “oh we can’t go in there it’s a patient” well to my delight it was my daughter going up to theatre, I jumped in and off we went. I signed a couple of consent forms said a quick hello and goodbye to her and then she was straight in there.
I went back down to the fracture clinic and Cassius was all over and done with by lunchtime so we went and waited for his sister. It was only about half an hour when Mr. Pringle cam out and said it was all done. He was very happy with the procedure.
Baby was very sore so they sorted out all her morphine and antibiotics for safe measures and her ventilator. That took a while so we went and got lunch came back and then had a quick visit and then left. There wasn’t much we could do so we just let her rest.
I rang before I went to bed and they had put a catheter in so she could wee. She was very relieved they said after that. My poor baby. It’s now recovery time and it’s going to take a while but we are so glad that she has finally had this surgery.
I went back down to the fracture clinic and Cassius was all over and done with by lunchtime so we went and waited for his sister. It was only about half an hour when Mr. Pringle cam out and said it was all done. He was very happy with the procedure.
Baby was very sore so they sorted out all her morphine and antibiotics for safe measures and her ventilator. That took a while so we went and got lunch came back and then had a quick visit and then left. There wasn’t much we could do so we just let her rest.
I rang before I went to bed and they had put a catheter in so she could wee. She was very relieved they said after that. My poor baby. It’s now recovery time and it’s going to take a while but we are so glad that she has finally had this surgery.
Sunday, January 11, 2009
11th January 2009
Well today I got another nice long cuddle and Nimeesha kept bugging us for a cuddle. So just before we put her back into her bed, Nimeesha sat on my knee and we both held baby. It only lasted about 5 minutes and then Nimeesha had had enough.
I haven’t been too well the last couple of days, I think from having my tooth out and just been generally run down. I’m starting to get a cold and I don’t want to get sick otherwise I can’t go in and see baby. So as I was holding baby I was kinda nodding off to sleep, it didn’t last long though as we had to leave.
Tomorrow is going to be a very long day for us. I will be taking Cassius for his check up for his leg and then we will have surgery in the afternoon, so another long and tiring day for us at the hospital. Fingers crossed we get the surgery done this time.
I haven’t been too well the last couple of days, I think from having my tooth out and just been generally run down. I’m starting to get a cold and I don’t want to get sick otherwise I can’t go in and see baby. So as I was holding baby I was kinda nodding off to sleep, it didn’t last long though as we had to leave.
Tomorrow is going to be a very long day for us. I will be taking Cassius for his check up for his leg and then we will have surgery in the afternoon, so another long and tiring day for us at the hospital. Fingers crossed we get the surgery done this time.
10th January 2009
Today my daughter was in an older style incubator which looked like something off Doctor Who. She was quite smelly so we gave her a bath, and then a nice long cuddle. Antz and Nimeesha were on Christmas tree removal duty!! If you have ever been to the neonates around Christmas you will know what I’m talking about. The whole hallway from the lift going around into the reception is lined every year with Christmas trees. They are in pot plants with cement so each one weighs around 40kg. So you can imagine lifting all of those. Nimeesha had the card to open the door so she was the boss for a little while.
The ward is getting full at the moment, it is now got 42 babies!! It won’t be long and we will be over in the new hospital. We don’t plan on being there for long, my aim is to have my daughter home before Nimeesha turns 5 on the 14th of March.
The ward is getting full at the moment, it is now got 42 babies!! It won’t be long and we will be over in the new hospital. We don’t plan on being there for long, my aim is to have my daughter home before Nimeesha turns 5 on the 14th of March.
9th January 2009
Well I rang the neonates around 10am and everything was still scheduled to go ahead for some time in the afternoon. We arrived at the hospital by lunchtime and baby had already had a sponge wash and had been nil by mouth since 5am. We got her out for a cuddle because it would be about another week before we got one. We had her out for about an hour and then were told maybe surgery would be about 2 or 3pm. So we put her back and went downtown to get some lunch. While we were out we got a call saying that theatre had rung and they would call for her around 3.30pm. So we headed back to the neonates only to be told it would be around 5.30pm. Because I have had a tooth that has been killing me for ages, the coordinator from the neonates rang the dental department and explained the situation and asked if I could be seen. We got over there around 4pm and by 5pm I had my tooth pulled out. It has been bugging me for about 3 - 4 weeks, and it was such a relief to have it out. But it was so sore getting it done.
Anyway we got back to the neonates just after 5pm and then Mr. Pringle came in to tell us that he was calling surgery off for today. He was getting too tired and by the time they would finish would be well after 9pm. So the plan is for it to be done on Monday afternoon. He was so apologetic for wasting our time but we would rather have him wide awake then half asleep, but it wasn’t a waste of our time because I finally got my tooth out.
Anyway we got back to the neonates just after 5pm and then Mr. Pringle came in to tell us that he was calling surgery off for today. He was getting too tired and by the time they would finish would be well after 9pm. So the plan is for it to be done on Monday afternoon. He was so apologetic for wasting our time but we would rather have him wide awake then half asleep, but it wasn’t a waste of our time because I finally got my tooth out.
Thursday, January 8, 2009
8th January 2009
Our daughter is now weighing in at 1515gms!! Yay, it may not sound big but that is big to us, considering how little and delicate she was. I finally got a cuddle today after nearly a week without one. She is a lot easier to maneuver around, that sounds a bit funny doesn’t it. But you would know what I mean if you had seen all the tubes and cords and how small she was.
The nurses rang Mr. Pringle up for us and he has booked her into theatre at midday tomorrow. So if all goes to plan she will be stitched back up and hopefully it all works out okay. We are confident things will go to plan, so tomorrow will be another long day for us again.
If I don't post on here for a few days then don't panic and think anything has happened, it'll just mean I'm tired and haven't got time to do it, altough I might take my laptop into the hospital to give us something to do while we wait.
The nurses rang Mr. Pringle up for us and he has booked her into theatre at midday tomorrow. So if all goes to plan she will be stitched back up and hopefully it all works out okay. We are confident things will go to plan, so tomorrow will be another long day for us again.
If I don't post on here for a few days then don't panic and think anything has happened, it'll just mean I'm tired and haven't got time to do it, altough I might take my laptop into the hospital to give us something to do while we wait.
7th January 2009
Well our little girl has now reached 1475gms. That is really big to us considering she only weighed 440gms when she was born. We are now on day 68.
We finally met up with the surgeon, Mr. Pringle and yes he wants to close her stoma back up to get her gut working properly. He does have concerns that it may not work or it may leak, but we will cross that bridge when we come to it. We trust him as he is an excellent surgeon. If all goes well he is looking at having her surgery done this Friday. If not it will be next week, but he wants it done sooner rather than later.
We also met up with Dr Dixon the genetics lady. She is concerned that her upper arms and her upper legs are short. She should have done what they call catch up growing by now. That means she should be weighing what the other babies are. She has put on weight but not enough. But she has had things happening that have affected this. For instance her stoma, her heart and everything else she has had. So the plan is to have a skeletal study done when she reaches her due date which is the 2nd of Feb.
We finally met up with the surgeon, Mr. Pringle and yes he wants to close her stoma back up to get her gut working properly. He does have concerns that it may not work or it may leak, but we will cross that bridge when we come to it. We trust him as he is an excellent surgeon. If all goes well he is looking at having her surgery done this Friday. If not it will be next week, but he wants it done sooner rather than later.
We also met up with Dr Dixon the genetics lady. She is concerned that her upper arms and her upper legs are short. She should have done what they call catch up growing by now. That means she should be weighing what the other babies are. She has put on weight but not enough. But she has had things happening that have affected this. For instance her stoma, her heart and everything else she has had. So the plan is to have a skeletal study done when she reaches her due date which is the 2nd of Feb.
Wednesday, January 7, 2009
6th January 2009
Well we missed the surgeon and apparently the genetics doctor wants to catch up with us. She wants to discuss her short limbs and find out our family history. I’m going to blame everything on her dad of course!!! So our plan is to be at the hospital by 4pm tomorrow and meet up with the surgeon and the doctor.
We took another cake in today for all the fabulous work that the nurses are doing for our little girl. It was chocolate today, I think next time I’ll have to make 2 and share 1 out with the parents.
We took another cake in today for all the fabulous work that the nurses are doing for our little girl. It was chocolate today, I think next time I’ll have to make 2 and share 1 out with the parents.
5th January 2009
Well I may as well pack up our house and move into the hospital. Today my son Cassius had an appointment at the orthopedic clinic. His appointment was at 10.15am and we had to be there 15 minutes early. We were there at 10am and were told at 11am that we had to go and get an x-ray done. So that was another half an hour wait for the orderly to come to take us to x-ray. By the time we had the x-ray done and got back to the clinic and saw the doctor is was about 1pm. We had to get a covering put over his cast to make it stronger because he is going to start moving around more. We finally got out of the clinic and went up to see baby at around 2pm.
The surgeon was looking for us but we had missed him. I am hoping that he is wanting to close her stoma up. We will try and get there tomorrow by 4.30pm to see him. Other than all our other dramas our baby is doing really well and just chugging along as she does.
The surgeon was looking for us but we had missed him. I am hoping that he is wanting to close her stoma up. We will try and get there tomorrow by 4.30pm to see him. Other than all our other dramas our baby is doing really well and just chugging along as she does.
4th January 2009
Sunday, well today is a bit of a slow day because we all didn’t get to bed until after 3am. Our friend decided he wanted to have a drink with Antz for the first time, so we had a very entertaining night.
Our daughter Nimeesha came in with us for a visit and was getting spoilt from the nurses. She was allowed to go into the staffroom and choose what chocolate she wanted to eat. They have taken a shine to her because she is very helpful to them, so I think that’s why she really likes coming in with us.
Our daughter Nimeesha came in with us for a visit and was getting spoilt from the nurses. She was allowed to go into the staffroom and choose what chocolate she wanted to eat. They have taken a shine to her because she is very helpful to them, so I think that’s why she really likes coming in with us.
3rd January 2009
The weekend again already. Baby is back on feeds again, having 1ml per hour for 3 hours and then 1 hour rest. Fingers crossed it goes okay and she can have some more. It’s hard to imagine such a small amount, but her tummy has taken quite some time getting used to the kai so it is a very slow process.
I got another nice cuddle with my girl today. She always laughs or smiles when she sets her machines off because the nurses always tell her to behave. Some of the nurses that haven’t worked with her before are quick to turn her oxygen levels up and down, but if you just leave her she generally gets herself together and corrects her levels.
I got another nice cuddle with my girl today. She always laughs or smiles when she sets her machines off because the nurses always tell her to behave. Some of the nurses that haven’t worked with her before are quick to turn her oxygen levels up and down, but if you just leave her she generally gets herself together and corrects her levels.
Friday, January 2, 2009
2nd January 2009
Our baby is now weighing in at 1350gms and growing quite nicely. She has tripled her birth weight and we have nearly reached 9 weeks. I can’t believe it’s been that long. It seems like only yesterday I gave birth to her.
As I had said on Monday she was a bit unwell so today she was having a blood transfusion. It had finished but the were keeping the iv line in her arm incase she needed some more blood or some medication.
I got another cuddle today and she was quite unsettled so we had the dummy on hand to give her. I think she wanted a feed because they have been stopped. Her output into her stoma bag was too much so they needed to stop feeds for 12 hours. They are going to try her on the special baby formula they have there to see if that makes any difference. Mr. Pringle will reassess after that to see what he is going to do regarding closing her stoma up. We can’t get it closed up if it’s not working properly otherwise her tummy will be back where we started. It’s always 1 step forward and 3 steps back. But it seems as though we are always on that 3rd step backwards.
As I had said on Monday she was a bit unwell so today she was having a blood transfusion. It had finished but the were keeping the iv line in her arm incase she needed some more blood or some medication.
I got another cuddle today and she was quite unsettled so we had the dummy on hand to give her. I think she wanted a feed because they have been stopped. Her output into her stoma bag was too much so they needed to stop feeds for 12 hours. They are going to try her on the special baby formula they have there to see if that makes any difference. Mr. Pringle will reassess after that to see what he is going to do regarding closing her stoma up. We can’t get it closed up if it’s not working properly otherwise her tummy will be back where we started. It’s always 1 step forward and 3 steps back. But it seems as though we are always on that 3rd step backwards.
Thursday, January 1, 2009
1st January 2009
HAPPY NEW YEAR!!! Wow I can’t believe it’s 2009 already, another year gone and dusted. Today is actually mine and Antz’s anniversary, that’s 9 years we’ve been together now and 2008 seemed like one of our toughest years with everything that has happened to us. But we are confident that 2009 will be a good year because we will get to bring our little girl home from the hospital.
We were having dinner at my mums house today so all the kids were there while we went into town. I got to give her another cuddle today and she was so wide awake. She was looking at us all as we were talking and then setting her machines off. We said to her don’t be naughty and then she would smile. She knows how to get those nurses working. She’s quite the character and the nurses love her, especially Paula who we call Aunty Paula. She came in to see her because she hadn’t seen her for a while. She opened her eyes and eyeballed her. It was quite funny.
Our daughter looks really good now and we are so happy she is doing well. We can ‘t wait for the weeks to go by so we can bring her home.
We were having dinner at my mums house today so all the kids were there while we went into town. I got to give her another cuddle today and she was so wide awake. She was looking at us all as we were talking and then setting her machines off. We said to her don’t be naughty and then she would smile. She knows how to get those nurses working. She’s quite the character and the nurses love her, especially Paula who we call Aunty Paula. She came in to see her because she hadn’t seen her for a while. She opened her eyes and eyeballed her. It was quite funny.
Our daughter looks really good now and we are so happy she is doing well. We can ‘t wait for the weeks to go by so we can bring her home.
31st December 2008
New Year’s Eve!! Today we got in to town after lunch so we could get a nice long cuddle. We hadn’t really made much plans for tonight knowing that we have to come back into the hospital and we didn’t really want to do it with a hangover.
When we walked in I got a bit of a fright, I couldn’t see her little hat and her cpap setup so I thought the worst. I thought she had been put back onto the ventilator because she wasn’t coping. BUT to my surprise she has been taken off midline cpap and is now on Wellington cpap. That means she just has prongs up her nose instead of the snorkel looking set up. She is a big girl now and won’t be long she will be joining her mates in the next room.
She was kinda smelly too and hasn’t had a bath only a sponge wash so we gave her a nice bubbly bath. Her big sister Nimeesha was there to help us as big sisters do. She also washed her incubator for the nurses. After her bath I gave her a nice long cuddle and she was all tuckered out so she slept most of the time. Her weight today was 1300gms.
When we walked in I got a bit of a fright, I couldn’t see her little hat and her cpap setup so I thought the worst. I thought she had been put back onto the ventilator because she wasn’t coping. BUT to my surprise she has been taken off midline cpap and is now on Wellington cpap. That means she just has prongs up her nose instead of the snorkel looking set up. She is a big girl now and won’t be long she will be joining her mates in the next room.
She was kinda smelly too and hasn’t had a bath only a sponge wash so we gave her a nice bubbly bath. Her big sister Nimeesha was there to help us as big sisters do. She also washed her incubator for the nurses. After her bath I gave her a nice long cuddle and she was all tuckered out so she slept most of the time. Her weight today was 1300gms.
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