Yesterday we had a meeting with the Consultant in charge of Trinz care here at starship hospital. It was really good and he answered all of our questions. We asked him about her outgrowing her lungs. His reply was that to his belief if she was going to do that she wouldn't have even survived neonates and wouldn't have been able to come home. If she had survived neonates and came home she wouldn't be on low flow oxygen but on cpap. So that was a huge relief to us to hear that.
She is going to be coming back to starship in about 3 months time to have a bronchoscopy done, where they put the camera into her lungs to have a look and see the extent of all the damage that has been caused by her infections and pneumonia etc etc.
If all goes to plan over the weekend we will fly home on Tuesday. Well not home but we will go back to Wellington Hospital with a whole list of new medications to keep her well.
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