Saturday, November 21, 2009
Thursday, November 5, 2009
She finally made it
Wow what a year! My baby has finally turned 1. What a rocky road we have had to get this far. I never even imagined 1 year ago that we would've even made it to her 1st birthday. It's been such a journey for everybody involved in her life, but especially my family. My kids have been through so much with their little sister and they understand so much more than what we think. Right from the start they have been there, they have cried at times because it used to upset them. When I showed Nimeesha (my 5 year old) the little video I had made she started crying. She said it was just so sad. Their sister means the world to them and if anything happened they would be so devastated.
Her birthday was a good one. We didn't have everybody there we would have liked to. A lot of the family had flus and chicken pox so it was just the people that weren't unwell. She managed to stay awake through most of her birthday and conked out towards the end. I think she was wondering why there was so many people looking at her but they weren't dressed in blue scrubs or had doctors coats and stethoscopes.
Antz was great and he thanked everybody for all the help and support they've given us and he thanked our kids (and made them cry!). The kids have probably been through the most this year. Getting shoved around from person to person, getting dragged up to Auckland, not seeing me or their sister for sometimes weeks.
I want to thank all of the people that have helped us out this year and haven't judged us as parents, because we couldn't have been able to do what we needed to, to be with Trinity-Storm without the help of others.
She is still a very fragile baby and will probably be like this for the next few years, so please bear with us if we ever turn you away or turn down family events. It was so hard going to starship and watching her fight for her life, she fights for her life everyday, but that was especially hard when we were so close to the heavens gates. All of the praying and thoughts that everybody sent her definitely worked, and the fact that she is a fighter and will never ever give up.
I LOVE YOU MY DAUGHTER AND SO DOES DADDY, WE WILL NEVER GIVE UP ON YOU AS LONG AS YOU NEVER GIVE UP XOXOXOXOXOXOXOXOXOXOXOXOXO
Her birthday was a good one. We didn't have everybody there we would have liked to. A lot of the family had flus and chicken pox so it was just the people that weren't unwell. She managed to stay awake through most of her birthday and conked out towards the end. I think she was wondering why there was so many people looking at her but they weren't dressed in blue scrubs or had doctors coats and stethoscopes.
Antz was great and he thanked everybody for all the help and support they've given us and he thanked our kids (and made them cry!). The kids have probably been through the most this year. Getting shoved around from person to person, getting dragged up to Auckland, not seeing me or their sister for sometimes weeks.
I want to thank all of the people that have helped us out this year and haven't judged us as parents, because we couldn't have been able to do what we needed to, to be with Trinity-Storm without the help of others.
She is still a very fragile baby and will probably be like this for the next few years, so please bear with us if we ever turn you away or turn down family events. It was so hard going to starship and watching her fight for her life, she fights for her life everyday, but that was especially hard when we were so close to the heavens gates. All of the praying and thoughts that everybody sent her definitely worked, and the fact that she is a fighter and will never ever give up.
I LOVE YOU MY DAUGHTER AND SO DOES DADDY, WE WILL NEVER GIVE UP ON YOU AS LONG AS YOU NEVER GIVE UP XOXOXOXOXOXOXOXOXOXOXOXOXO
Monday, November 2, 2009
Friday, October 30, 2009
Saturday, October 17, 2009
October 17th 2009
Well it's been a while since I've updated the blog and people have been asking me how she is. So far since our last hospital visit she has managed to stay well enough to be at home. She keeps on getting a cold but it comes and goes.
She is putting on weight slowly, she is now 5.035kg so just over 10lbs. She is 2 weeks away from turning 1 so she is still very small.
Developmentally she is doing 5 month old things so that is quite a big step for her. She is trying to move around on the floor so it won't be long and she will be crawling. I'm not looking forward to that because she will need oxygen tubing extensions and that can hinder the flow of oxygen to her. That also means she will need to be watched very closely because she is so small she is going to fit in small spaces. But at least we can follow the oxygen tubes to see where she is.
The other kids are happy to be back home and going to school. They miss the ronald mcdonald house school though because of how relaxed it was and the 1 on 1 attention they used to get.
We have slowly started to unpack our boxes from when we moved in here. Over the next week it should be all done then we can park our car in our garage and won't be tripping over boxes in the hallway.
We are also planning Trinity-Storm's 1st birthday and baptism. It is going to be very small in comparison to my other kids 1st birthday's. 2 of the kid on Antz's side of the family have got chicken pox at the moment so their families won't be able to come. Even though it's 2 weeks away they may still be carrying the virus and we can't risk anything with her. People just don't understand that her immune system is basically stuffed. I don't care if I sound mean because my daughter's life is more important than somebody else's feeling. Like it or lump it I say.
I will post some more pictures after her birthday.
She is putting on weight slowly, she is now 5.035kg so just over 10lbs. She is 2 weeks away from turning 1 so she is still very small.
Developmentally she is doing 5 month old things so that is quite a big step for her. She is trying to move around on the floor so it won't be long and she will be crawling. I'm not looking forward to that because she will need oxygen tubing extensions and that can hinder the flow of oxygen to her. That also means she will need to be watched very closely because she is so small she is going to fit in small spaces. But at least we can follow the oxygen tubes to see where she is.
The other kids are happy to be back home and going to school. They miss the ronald mcdonald house school though because of how relaxed it was and the 1 on 1 attention they used to get.
We have slowly started to unpack our boxes from when we moved in here. Over the next week it should be all done then we can park our car in our garage and won't be tripping over boxes in the hallway.
We are also planning Trinity-Storm's 1st birthday and baptism. It is going to be very small in comparison to my other kids 1st birthday's. 2 of the kid on Antz's side of the family have got chicken pox at the moment so their families won't be able to come. Even though it's 2 weeks away they may still be carrying the virus and we can't risk anything with her. People just don't understand that her immune system is basically stuffed. I don't care if I sound mean because my daughter's life is more important than somebody else's feeling. Like it or lump it I say.
I will post some more pictures after her birthday.
Monday, September 28, 2009
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25th September 2009
After only 2 days of being at home with our little girl we were heading straight back into Wellington Hospital. She had a really runny nose and had a cough. They wanted to make sure she didn't get worse and to keep a close eye on her.
The consultant in Auckland told us to keep her oxygen on half a litre but the nurses kept trying to turn it down. I had to explain it over and over again why. It is too fast too soon to turn it down she will get sick all over again.
The good news was that the doctors said her lungs were doing great and she didn't have any wheeze in her chest.
On Sunday the 27th we were allowed to go home again and so far so good. She still has a runny nose and a bit of a cough but isn't as bad as the last time. She is really enjoying being at home and I'm glad it is school holidays because we can just lock ourselves in the house.
I've told everybody that they need to ring first before visiting. No kids allowed. No colds, coughs, sneezes. Some people don't understand why I'm being so picky but my daughter's life depends on staying well. A simple cold is enough to kill her and I saw her die twice and I am not about to see it again.
The consultant in Auckland told us to keep her oxygen on half a litre but the nurses kept trying to turn it down. I had to explain it over and over again why. It is too fast too soon to turn it down she will get sick all over again.
The good news was that the doctors said her lungs were doing great and she didn't have any wheeze in her chest.
On Sunday the 27th we were allowed to go home again and so far so good. She still has a runny nose and a bit of a cough but isn't as bad as the last time. She is really enjoying being at home and I'm glad it is school holidays because we can just lock ourselves in the house.
I've told everybody that they need to ring first before visiting. No kids allowed. No colds, coughs, sneezes. Some people don't understand why I'm being so picky but my daughter's life depends on staying well. A simple cold is enough to kill her and I saw her die twice and I am not about to see it again.
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