Well it's been a while since I've updated the blog and people have been asking me how she is. So far since our last hospital visit she has managed to stay well enough to be at home. She keeps on getting a cold but it comes and goes.
She is putting on weight slowly, she is now 5.035kg so just over 10lbs. She is 2 weeks away from turning 1 so she is still very small.
Developmentally she is doing 5 month old things so that is quite a big step for her. She is trying to move around on the floor so it won't be long and she will be crawling. I'm not looking forward to that because she will need oxygen tubing extensions and that can hinder the flow of oxygen to her. That also means she will need to be watched very closely because she is so small she is going to fit in small spaces. But at least we can follow the oxygen tubes to see where she is.
The other kids are happy to be back home and going to school. They miss the ronald mcdonald house school though because of how relaxed it was and the 1 on 1 attention they used to get.
We have slowly started to unpack our boxes from when we moved in here. Over the next week it should be all done then we can park our car in our garage and won't be tripping over boxes in the hallway.
We are also planning Trinity-Storm's 1st birthday and baptism. It is going to be very small in comparison to my other kids 1st birthday's. 2 of the kid on Antz's side of the family have got chicken pox at the moment so their families won't be able to come. Even though it's 2 weeks away they may still be carrying the virus and we can't risk anything with her. People just don't understand that her immune system is basically stuffed. I don't care if I sound mean because my daughter's life is more important than somebody else's feeling. Like it or lump it I say.
I will post some more pictures after her birthday.
2 comments:
Hi guys, been meaning to say thanks so much for your lovely card and chocs I got from you guys. I have been on holiday for the past 5 weeks in Hawaii and had a blast. Hope you guys are all well and I would like to wish Trinity-Storm a very big Happy 1st Birthday. I often think of you all and how you are getting on. Will send you proper email soon! Love Hannah (PICU Nurse)
Rachelle pointed me to your blog. I don't think it's mean at all to be protective of your child. I was a fragile child, born with congenital heart defects, and my parents had a really difficult job, I think balancing being protective with letting me do things. We've been lucky - I'm now 58, with one surgery as a child and another 4 months ago. I wish you all the best for your little girl and your family as a whole.
Betty-Ann
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