10th March 2009

Hi everybody I know it's been so long since I have posted anything. We have been so busy I barely even get time to think. My daughter Nimeesha is nearly 5 so we have been trying to sort out things before her big first day of school. My little baby Trinity-Storm is nearly ready to come home. They told us last week that she can come home next week (16th March). It's exciting but scary at the same time. I have kind of gone into panic mode because we didn't have a lot for her, in terms of car seat, bassinet, pram etc. But it's okay because I sorted all that yesterday and she has brand new everything. I need to get a big oil heater for our living room as well, I have a pellet fire but I need to keep the temperature in our house the same. We have small oil heaters for our bedrooms but nothing for our living room. I don't have drawers for her either so if there is anybody out there that can give us some drawers please do!!
I have so much to do at my house in terms of cleaning and organising space. My mum is going to come and help me out and so is my sisters and sister in laws. I think I'm going to be over cautious with her for a while until I get used to her being at home.
We have to do the cpr course and learn how to put her feeding tube down her nose and how to work her oxygen. yes she is coming home but we will have her on oxygen and on a feeding tube. She cannot drink normal formula milk and is on pepti junior which is specially made for her because of her malabsorption. We will be bringing home a whole pharmacy of medications so I am going to need to keep them all separate and in a safe place.
The thing that I am going to find the most stressful is the visitors. It's going to be hard explaining to them that they can't just turn up when they feel like it. If they have been around people that are sick they can't come and visit because I can't risk her getting sick. I am going to be isolated from people for a while, but that's okay as long as my daughter doesn't get sick.
Antz and myself are rooming in the hospital tonight with baby in the room with us. We have to make sure we can cope with her and get used to a night without sleep!!! AAAAHHHHHHH!!!
I know for the first couple of weeks I won't be sleeping at all anyway.