Today was a big day for my little girl. She had her eye test at 7am and when I arrived at 10am we went down to the Nuclear Medicine department for her HIDA scan. It looked quite funny because it was a bed that an adult would lie on for a MRI or something similar, and there was this tiny little baby on the end of it. She was really good, she was starving but she behaved. Whoever invented the dummy is a genius. I don’t know how I survived all of my other 3 children without using 1. The test took ages but it went really well and they seemed to be pleased with it. They had to squirt some stuff into her veins and then look at her liver through a special camera. It looked really cool and it kinda looked like the milky way with lots of little dots.
When I got back I was told that she was going to have laser surgery for her eyes tomorrow because they were getting worse. 1 was worse than the other so they needed something done now rather than wait. It wasn’t new information we knew that she would probably end up having this it was just a matter of when. It will be done at around 7.30am so I definitely won’t be going in for that.
I know she will be in very capable hands so I won’t have anything to worry about.
Tuesday, February 24, 2009
22nd February 2009
Today I went in with Aunty Freda and Uncle Steve and Antz stayed home to cook tea and hang out with the kids. Yay a break for me!! It has been nearly 1 month since they have seen baby, so it’s their first visit to the new unit.
We were there in time for her feed and to do her cares, so Aunty Freda got to feed her a bottle and I completely stripped down and changed her bed. She drunk about 20mls for Freda and was wide awake which was really good.
We were there for about 4 hours and baby was really settled and calm. Typical of her to behave for her aunty and uncle and misbehave when we are there.
We were there in time for her feed and to do her cares, so Aunty Freda got to feed her a bottle and I completely stripped down and changed her bed. She drunk about 20mls for Freda and was wide awake which was really good.
We were there for about 4 hours and baby was really settled and calm. Typical of her to behave for her aunty and uncle and misbehave when we are there.
21st February 2009
Yay it’s the weekend at last. My feet hurt from working last night and I’m tired because I didn’t go to bed until after 1am.
We all went in again and the kids took in their mp3 players and their drawing and colouring in books. Devante drew a picture of a zombie and gave it to Corinne and told her it was her self-portrait. I don’t think she was too impressed!!
We finally caught up with the doctor today. Trinity’s bone scan was fine and there is nothing wrong with the length of her bones and her poor growth is a metabolic and nutritional issue not a bone one. Phew! At least we can rule that out and they can work on getting her bigger and stronger. There is still some tests to be done to rule out cystic fibrosis. She is having an x-ray test on Monday, it’s not your typical x-ray though and it takes about 2 and a half hours. The patients are supposed to lie still for the procedure so I don’t know how that is going to work with her.
We all went in again and the kids took in their mp3 players and their drawing and colouring in books. Devante drew a picture of a zombie and gave it to Corinne and told her it was her self-portrait. I don’t think she was too impressed!!
We finally caught up with the doctor today. Trinity’s bone scan was fine and there is nothing wrong with the length of her bones and her poor growth is a metabolic and nutritional issue not a bone one. Phew! At least we can rule that out and they can work on getting her bigger and stronger. There is still some tests to be done to rule out cystic fibrosis. She is having an x-ray test on Monday, it’s not your typical x-ray though and it takes about 2 and a half hours. The patients are supposed to lie still for the procedure so I don’t know how that is going to work with her.
20th February 2009
Today was your typical Wellington day, pouring down with rain!! So Antz didn’t go to work because he probably would’ve drowned in the rain.
We were in there for most of the day so we got to give baby a bath and spend quite a few hours with her. Nimeesha helped give her a bottle and pick out her clothes.
The genetics lady and the dietician were in the unit looking at baby’s notes and skeletal scans. We didn’t end up catching up with them because they took too long and we had to get the boys from school. Hopefully we can just find out from the doc’s on the weekend what the findings were.
There is rugby on tonight at the stadium so it’s my first night back at work. It feels strange going to work after not working for so long.
We were in there for most of the day so we got to give baby a bath and spend quite a few hours with her. Nimeesha helped give her a bottle and pick out her clothes.
The genetics lady and the dietician were in the unit looking at baby’s notes and skeletal scans. We didn’t end up catching up with them because they took too long and we had to get the boys from school. Hopefully we can just find out from the doc’s on the weekend what the findings were.
There is rugby on tonight at the stadium so it’s my first night back at work. It feels strange going to work after not working for so long.
Sunday, February 22, 2009
19th February 2009
Today we had our visit and then Mum rang me to say my cousin and Aunty from Levin were down. I just told Mum to take them in because we had been in. Mum said Trinity had just had her feed and was awake and upset with her reflux and the nurse wouldn’t let Mum pick her up. So I’ve told Mum if that happens again to just pick her up and tell them to ring me if they have a problem with it. I could understand if she was asleep but she was wide awake and upset.
The doctors were there while mum was there and they were trying to work out what to do because baby isn’t growing fast enough for them and she gets tired easy when she is trying to have her bottle. It’s easy to see why she gets tired. She is still so small. We still haven’t caught up with the doctors so hopefully we can on the weekend.
There was a nice article in our other local newspaper today, the Citylife. It was really nice and I’m glad it came out the way it did. There was a person I forgot to thank though, that was doctor Jeremy Tuohey. He was the doctor that did my scan and picked up the placental problems in the first place.
The doctors were there while mum was there and they were trying to work out what to do because baby isn’t growing fast enough for them and she gets tired easy when she is trying to have her bottle. It’s easy to see why she gets tired. She is still so small. We still haven’t caught up with the doctors so hopefully we can on the weekend.
There was a nice article in our other local newspaper today, the Citylife. It was really nice and I’m glad it came out the way it did. There was a person I forgot to thank though, that was doctor Jeremy Tuohey. He was the doctor that did my scan and picked up the placental problems in the first place.
18th February 2009
We all went into the hospital today. The kids just spend all their time walking in and out and finding cups to get drinks of water.
One of our friends that was in the old unit was back for their son’s operation. It was good to see them and see how much he had grown in a few short weeks.
Corinne was calling us all trouble as usual and Antz spent more time in their room than in the room with baby. And he says I talk a lot, whatever!!!
Baby was a bit unsettled when it was time for us to leave because of her reflux so we left her in the nurses capable hands.
One of our friends that was in the old unit was back for their son’s operation. It was good to see them and see how much he had grown in a few short weeks.
Corinne was calling us all trouble as usual and Antz spent more time in their room than in the room with baby. And he says I talk a lot, whatever!!!
Baby was a bit unsettled when it was time for us to leave because of her reflux so we left her in the nurses capable hands.
February 17th 2009
Today is darts day so I took my Mum in again. She got to have a nice long hold with her. She hasn’t had a hold of baby before so today was her first time. She kept asking me if I wanted a hold but I just let her have her. I get to hold her every day.
She was good today, didn’t complain too much after her feed, but it helps with her dummy because it makes it not as sore when she has her reflux.
My daughter has been having quite a few tests lately but we couldn’t get any answers as to what they are for and why, hopefully tomorrow we catch the doctors on their rounds so we can ask them.
There was an article in our local newspaper the Kapi Mana today, so I took in a copy for the nurses and doctors to keep. Everybody has been texting and ringing and commenting on the nice article and picture. It’s the first picture actually of me, Antz and baby by ourselves.
She was good today, didn’t complain too much after her feed, but it helps with her dummy because it makes it not as sore when she has her reflux.
My daughter has been having quite a few tests lately but we couldn’t get any answers as to what they are for and why, hopefully tomorrow we catch the doctors on their rounds so we can ask them.
There was an article in our local newspaper the Kapi Mana today, so I took in a copy for the nurses and doctors to keep. Everybody has been texting and ringing and commenting on the nice article and picture. It’s the first picture actually of me, Antz and baby by ourselves.
Monday, February 16, 2009
16th February 2009
Today me and Nimeesha caught the shuttle van in from Keneperu Hospital. She was buzzing out all the way there because it wasn’t our car and she got to sit right at the back by the window that opens. Then she was freaking out even more because the shuttle van door opens by a push of a button. It’s amazing what amuses kids. It was really nice going in by shuttle though because we got dropped off right outside the building and didn’t have far to go at all.
We got there in time for her 1pm feeding so Nimeesha held her while I gave her the bottle. She had about 10mls and then decided she was tired. So the rest was through the NGT. She had her feed and then for about 1 hour afterwards I had to hold her up because she was sore from her reflux. She didn’t vomit at all but you could see it was still very sore. My poor girl. She has started having medication for it, but it’s not just going to make it go away in a day or two.
We got there in time for her 1pm feeding so Nimeesha held her while I gave her the bottle. She had about 10mls and then decided she was tired. So the rest was through the NGT. She had her feed and then for about 1 hour afterwards I had to hold her up because she was sore from her reflux. She didn’t vomit at all but you could see it was still very sore. My poor girl. She has started having medication for it, but it’s not just going to make it go away in a day or two.
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